It’s long! It’s true! It’s a bit ishy… shit happens.

Nothing can prepare you for childbirth. There are some things however that you shouldn’t have to be prepared for. In this society, in this day and age, we expect certain things – cleanliness, professionalism, respect and dignity during the process of bringing a new life into this world. In fact we expect those basic things at all times. In England, in 2009, in a large and respected hospital, why were these basic needs missing from my experience?
My twin boys are now 15 weeks old and 1 day. It has taken me this long to find the energy, time, and peace of mind to write this down. Let me start by pointing out that I knew that having twins was always going to be difficult – before, during and after birth, but that’s why I was there at that hospital, not planning a home birth, no birthing pool experience preparations. No, trusting them to cut me open and yank those babies out. I trusted in those basic principles and rights and had no reason to believe I would not be granted them.
My pregnancy was tough but enjoyable. People treated me differently, I could stop worrying about dieting, I loved the way my body looked and changed, even right up to the end when I was huge at 37 weeks. It was very hard work too, I suffered from terrible odema, carpal tunnel in hands and feet, sciatica, heart burn, lethargy, breathlessness, and towards the end could hardly walk. I stopped work at 32 weeks, not a day too early. I spent the last few weeks of my pregnancy trying so desperately to keep those babies inside me – I knew it was the best place for them to be. I read a stack of books about breast feeding and sleep routines, joined several groups on the Internet, and talked to everyone I could who had experience of having children. I slept as much as possible, allowed my family to spoil me, kept away from cigarette smoke, drank no alcohol, wouldn’t even take paracetamol or anti-histamines. I gave up caffeine completely in all forms except chocolate which I craved like crazy. I drank water constantly and masses of fruit. I did everything right – these babies were a long time waited for and at 39 I didn’t want to wait any longer, or have to go through this again. I was going to the toilet every half hour in the last few weeks, and hardly sleeping as I was so uncomfortable, but when it got to be too much for me I would just tell myself mantra-style ‘it is temporary’ over and over. I drank in every experience of my pregnancy, also keeping a diary in words and pictures so I would never forget it.
At the beginning of my third trimester baby number 1 had moved into breech position and I was told to prepare myself for a caesarian section. To be honest I had no preconceptions. If anything I was quite pleased because it sounded a whole lot less painful than natural delivery which terrified me. I knew several people (most actually) had had c sections, all emergency ones and understandably awful as they had already gone through many hours of labour beforehand. I knew one person who had had 2 planned (elective) sections and was happy with her decision. I had no reason to worry about it. The information I was given was vague. It will be well planned in advance with a whole team of professionals, your husband can be there but no, not your mom. It carries the risks of any major operations and you might not be able to drive straight after. Sounded ok, of course I was scared – I was scared stiff of having two babies to care for more than anything else, but at the end of the day I just wanted them delivered safely and so trusted the professionals to do whatever was best.
My section was planned for 38 weeks. However at 36 weeks my body was straining to its limits. One day I developed a numbness in my mouth, a feeling as If I had been to the dentist and the anaesthetic was wearing off, it was weird but not worrying. The following morning half of my face had dropped – like I had had a stroke, which is what everyone thought. Half an hour careful exploration on the Internet assured me I had developed Bell’s Palsy. A phone call and visit to triage at the hospital confirmed this. It also turned out that my blood pressure was sky high and blood and urine tests were taken. On my Internet searches I found out that Bell’s Palsy is not too uncommon in pregnancy, more common when carrying multiples, and generally lasts between 3 weeks and 6 months. It can be treated with steroids but this must not be done during pregnancy or while breast-feeding. I know how to use the Internet properly – I cross-referenced my information and was fairly confident with the information I had found.
While in triage I was seen by 4 doctors who asked me the same questions and carried out the same tests. The second one was about to prescribe me steroids and stated they were perfectly safe when I queried this, the third came in and said they couldn’t treat it because steroids were unsafe to use. After 4 or 5 hours of this I was admitted to hospital there and then.
I was taken to a delivery ward where I stayed until late into the evening, my husband was there and my parents came along. It was a nice enough room and the 2 midwives that took care of me in succession were lovely, making tea and coffee for my family and toast for me. It was scary – I had never stayed in hospital before and didn’t really know what to expect, on top of this the palsy was getting worse – I was dribbling when I ate, slurring my speech, and one eye was constantly watering because it wouldn’t fully close. Eating was just really hard and I kept biting my lips and gums and dropping food out of my mouth. I slept on and off, and much much later was taken up to a ward where I was given a room to myself, sadly with no TV, radio and not knowing I could use my phone or bring in a laptop. I was there for 4 nights. I just remember feeling very sad and lonely. I remember the staff all being pretty nice to me but being surprised at how many people just walked in and out of my room constantly, thankfully I had a bathroom so at least I could have privacy in there. The following morning I had a pre-booked ante-natal appointent and scan for 36 weeks. I got up in the morning and met my mom and dad in the waiting room. The consultant announced that they were bringing the section forward to 37 weeks – the 22nd of January, it was the 16th then and suddenly it all seems so close and so real. I was emotionally just overwhelmed – the palsy, the night in hospital, and now 6 days till I would have my boys.
****
I did attempt to resume this when my twins were 5 months and 4 days old. Every time I try it seems an overwhelming task. I thought I would have laid down these words long ago. My boys are now 6 months, 2 weeks, 5 days. They have had their first holiday to Spain, become accomplished Baby-led weaners, and grown out of a crate-load of clothes. Arlo has had a big boy cot for quite a while and now is in his own room with his daddy. Niah is combination fed. Things have changed – I can usually get them to nap twice a day! Like right now (took some photos just now, I’ll add them to this later maybe).
While in hospital pre-birth I was also prescribed some medication for my high BP. Herein possibly started the problems. There seemed to be some uncertainty about whether I was to be taking the medication at regular intervals or only when my BP went high. There seemed to uncertainty about how high was normal for me at that time, and if I took the tablets regularly, how many. This is crazy I know but for 5 days it went on in swings and roundabouts. Every day a different midwife introduced herself, then every night a different one, every day a different doctor or consultant. Every day I was promised that someone would come and see if I was ‘allowed’ to go home. The heart-breaking one was on the Saturday – a doctor in the morning had said I could go home in the afternoon, then after waiting all day changed her mind and said the following morning her colleague would discharge me after final checks. In the morning I was packed and ready and the doctor never came. I kept asking but he never came. Then after 3 days I was ushered out of the room because it was needed for someone with a disability – fair enough, but we were actually almost physically pushed out of the room, it was a hysterical rush! Did I mention that they took the only chair from the room and kept forgetting to bring it back so my mom, dad, Robin had no where to sit most days – the floor or my bed only.
I moved to another room (was soooo lucky to have my own room with a drafty window) – then I got to see the real deal, no more comfy bed with adjustable support, nope! It was an old steel frame and however I positioned the pillows I ended up with metal digging into me, also it wouldn’t lie flat and I couldn’t lie on my back so I was crunched into 2/3rds of the bed.
On the final day, a Monday when I was told in the morning I could go home (the delivery was going to be on the Thursday – they wanted me to stay but I really needed to go home if only for a night, just to see my home, my cats, my things, hold my husband, in case anything went wrong, I can’t explain but I had to) we were told at about 9am that we were just waiting for a few tests. My mom was there, we were packed, it should only have been 2 hours max we were told. Well we waited, and we waited, and to cut a long story short, shifts changed, we kept asking what was up, people kept saying they had contacted the doctor. Eventually the message comes back that she forgot, was now in theatre (I think they meant had gone home). I sat on the bed and cried. A nurse came in and asked what was wrong and I tried to explain. She said to me ‘write it all down.’ So I did, I’m glad I did – as you can see some of my days / times are mixed up now. This is what I wrote on the scrap of paper I had (note the operation referred to was an outpatients op for a lump on my shoulder, a biopsy):
“- came in Thursday a.m. due to Bell’s Palsy. I could have gone to G.P. but I chose triage.
- on Thursday I was v. scared & had been for 24 hours & just had operation so high b.p. & hadn’t been sleeping.
- after medication & day sleeping started feeling better, agreed to spend 1 night here.
- on Friday a.m. was told I could go by doctor & do 24 hr urine collection at home. Packed my stuff, then midwife came up and told me registrar said no I had to stay 1 more night.
- on Saturday a.m. doctor came in and said I had to stay till Monday!
- on Saturday p.m. midwife said the doctor might let me go tomorrow cause bp was ok. Then I had to have more tablets even though it wasn’t that high.
- on Sunday no doctor came so had to stay. Had to have tablet. Don’t want tablets. Now my bp is getting higher because I want to go home & eat proper food & sleep in my bed & talk to my family before I come back on Wednesday for pre-op. I can’t sleep here now. 1-2 nights was helpful, this is making me feel worse now. Home please.
The food seems a silly point but I am vegetarian and had eaten little more than jacket potatoes for 4 days, no fruit was available most mealtimes unless you got there quick. ALL the tea and coffee was caffeinated. It was awful food, one day the cook actually phoned down to the kitchens to ask the best before date on the pudding because it looked so awful.
Eventually someone showed up and discharged me with tablets in hand at 10 pm! on the condition I returned on the following morning, I had to wear an ambulatory bp monitor for 24 hours (I had already started that as the outpatients thought I was being discharged and had efficiently set that up in the morning.) I also had to do a 24 hour urine collection. They forgot all about that until I reminded them as I was about to leave so it ended up being a 12 hour collection only (this was a protein check).
I went home, took my pills, and wore my monitor. On Tuesday morning I returned, my monitor reading showed I was fine, in fact my bp was too low. A consultant was asked for advice and apparently told to nurse to tell me to throw my pills away, that I shouldn’t be taking them. I actually didn’t throw them away, just left them in my bag. I was told to return the following day for pre-op tests.
Heart-breakingly when I returned the following afternoon they made me stay overnight, the night before the section, no choice or discussion. Many times in the previous week the words ‘allow’, ‘have to’, ‘make you’ were used in reference to my stay in hospital, treatment or medication. It hurts because I didn’t want to argue with them for the sake of my babies, but at the end of the day I could have walked out at anytime, why did it have to seem like a prison? This was supposed to be a happy, if scary, time, and it was starting to be just plain terrifying.
I was taken to a ward and just ‘plonked there’. It was the night before the delivery. My husband had to go home get my stuff. I sat on the bed and sobbed. I didn’t even care who was listening anymore. This ward was a sad place, no one came to offer help or smile, not to me or anyone else, for hours. I hadn’t been able to eat since I had come in, and after midnight I was nil by mouth (actually the nurses couldn’t decide if I was allowed water or not). Luckily Robin bought me some snacks before being ushered out at 10pm. Some family members were allowed to stay with some patients as long as they liked, others weren’t, it was very unfair.
There was nothing caring or dignified about my treatment in the morning. I was told I would be prepared for my section early, 8am ish, but not when the op might be. First thing I was woken up and jostled into the dressings, taped up etc… and told you’re first! I was terrified and Robin wasn’t there yet!
****
Robin did arrive in time. I was moved from the ward to a delivery suite, and waited in there for what seemed forever with Robin. I couldn’t get comfortable. From time to time someone would come in and ask me something. At one point my blood pressure was taken and the nurse/doctor said “we’ll just pretend we didn’t see that, it’s a bit high”.
Eventually I was taken into theatre, Robin had to wait outside. There were so many people in there. I was told to sit on the bed and they kept telling me to lean forward while they tried to inject me in the back. I really couldn’t, my bump was too big, it was so painful even trying. It took them a long time to inject me. I remember being told to lie down and feeling my legs go numb. I remember the anesthetist asking me if I could feeling anything and I said I could feel him poke me a little, and he said actually I’m pinching you very hard. Robin came in a little later. I was asked how I felt, I told them I was terrified. I counted at least 14 people in the room besides us. I didn’t really feel them cut into me, I was chatting to Robin and he was looking behind the curtain and telling me what they were doing to me. It was all relatively ok, I mean scary and a little odd feeling at times, but ok. Then I coughed a little and after I coughed the air out I couldn’t breathe it back in, I coughed again, I couldn’t breathe in, I tried to tell Robin I couldn’t breathe but I didn’t have enough breath. I remember him telling the anesthetists I couldn’t breathe, apparently they told him I was fine until he really insisted. I remember feeling myself losing consciousness, I was dying I thought. I remember an oxygen mask being shoved on my face and for one millisecond before I went under I thought “they will save me, they know I can’t breathe!” Then I passed out, Robin passed out too. When I came round I saw them lift Niah over the curtain and show me his bloody, waxy, wrinkled little head. I was in a bit of a dream state. I saw Robin (he had it seems passed out twice as he was convinced I was dead, the second time after they handed him Arlo, and he handed him back to the nurse “take him, take him!”) holding Arlo in a blanket next to my head. Then I heard crying and someone handed me Niah all wrapped up cozy. I don’t know how I managed to hold him, but I didn’t drop him I just stared at him in disbelief – Robin said ‘that’s Niah’ and I asked if he was sure and he told me he was because he was at the top. Then someone took him away and gave me Arlo. I looked at him and said ‘you’re funny lookin’’.
After that were stitches and cuddles and Robin tried to tell me what had happened. No one really knows and the closest thing I’ve found to it is this:
http://bja.oxfordjournals.org/cgi/content/full/85/3/474
It was during stitching that I knew something was wrong. It started to hurt – REALLY hurt, even though I was still anaesthetized. By the time they had finished (about 30 mins later) I was in agony. I was taken into the recovery room and I had people all around me pumping me full of morphine and asking me how I felt on a scale of 1 – 10. Two of the anesthetists stayed with me for quite a long time and came back regularly to check. They were outstanding individuals. I think Robin was there most of the time, and I remember my tiny babies being in a crib at my side. I remember the midwife asking if I wanted to breast-feed or whether she should give them a bottle. I told her to give them a bottle but luckily before she did she asked again if I wanted to try to breastfeed. I was in absolute agony and high on morphine but I said ok and she latched Niah onto my breast. The first time my mom saw me was about 4 hours after the operation had begun and Niah was on my breast feeding like it was the easiest thing in the world to do for a tiny tiny baby. The boys were born just before 11:30am and my parents had been at the hospital since 7:30am, mom didn’t see me until about 3:30pm, and my dad not until a couple of hours after that. They had sat in the canteen from 7:30 until 1pm not knowing if I was alive or dead in utter silence. I remember my mom telling me weeks after how they had nothing to say to each other. They didn’t know what to say. They were so scared. Then Robin had come out after the babies were born and found them. He was ashen grey and started to cry and told them he thought he had lost me. This part of the story is no memory of mine but makes me so emotional. That they love me so much and were so scared to lose me, and my babies they didn’t even know yet.
I was in so much discomfort that afternoon and all through the night. I slept in the recovery room. There was another woman and her family on the other side of the curtain. I was alone after my family went home and lying at a 45% angle with a tube inside me and blood soaked sheets, pads etc… I couldn’t move at all. I had to ring for help every time I wanted to feed my babies. I couldn’t bend or twist or lift my body even an inch.
Throughout the night the midwife, and then the next midwife, tried to latch Arlo on, but he struggled. He never really got the hang of it. I drifted in and out of morphine-hazed sleep until the following morning. I guess Robin arrived at some point, my memory is vague. Anyway, by morning they allowed me to drink and eat, it had been over 24 hours since I had, although I had a drip. I was so thirsty. The first thing I really remember was arrangements being made to take me to a ward. Ward 3. I remember a couple of orderlies rolling/lifting me across to another bed and screaming in pain. Well I say screaming but I hold it in very well, more like moaning I guess. I wish I had screamed, really loud, but I didn’t want to make a fuss. I was pushed on this bed along corridors and in lifts. It was so painful. No one was careful not to hurt me. I just knew they had no idea how much pain I was in. It wasn’t just the scar, my sciatica from the pregnancy was excruciating.
Ok, the next 4 or 5 days are a mess of memories. Excuse me if they warp time a little. Not long, less than an hour after arriving at the ward a couple of … I thought nurses but my mom and Robin think they were orderlies, not sure… came in and said they had to get me moving. I remember crying that I couldn’t, I remember being forced out of bed. I remember my parents and Robin being told to leave the room ( and they did and to this day suffer awful awful guilt that they trusted these ‘people’). I remember that I could hardly walk and I was shuffled / led / guided out of my room AND they left my babies behind. They made me leave the room leaving my babies unattended, after having made my family vacate?! The distance from my room to the shower unit was probably 20 metres, it was through one ward, across to the opposite one, and through that. It took me about 20 minutes / half an hour to get there. I was made to walk crying (not forgetting my palsied face (I had Bell’s Palsy – I’ll write about that later) that couldn’t speak without drooling), with a catheter inside me and hanging down, with blood dripping down my legs, with a gown open up the back, in the worst pain I have ever experienced in my life, through two wards of patients – husbands, fathers, children saw me. Some looked horrified, I remember that. I felt like a freak. I was in so much pain. The one nurse/orderly kept saying how she had had so many children and it wasn’t that bad, and then pointed at some woman on a bed saying that she had had a section and wasn’t making a fuss.
The shower unit was next to the open door to the ward. I was taken in, catheter removed and stood next to a chair so I could support myself and stripped off. The shower was turned on. The door was left open. just feet away were husbands / fathers. I was told to pull the cord when I was done and then left alone. I just stood there holding on to that chair. Every part of my body hurt so much I just wanted to keep it all still. Movement was pain and the walk from my room had almost made me pass out with pain already. After maybe 5 mins of crying under that shower and just letting the water wash over me I gingerly reached for the cord and called for help (WHY COULDN’T MY MUM OR MY HUSBAND HAVE HELPED ME SHOWER IF IT WAS SO IMPORTANT – they just left me there anyway). I was dried and wrapped in a gown and walked back . Another long, long, painful degrading walk…
****
The next few days were the longest and vaguest days of my life. Niah was taken into NNU for jaundice and I spent a night with only Arlo. I cried with love for my babies. I ate little. A multitude of midwives / nurses / lactation experts gave me conflicting advice – like little whispers in the ears ‘well she said might have said that you should do this but I think that you should …’ It was so bizarre. A couple of things that stand out as weird and unhelpful:
My mom was bringing me in flasks of decaffeinated tea and coffee. There were a couple of staff who would make me hot chocolate or decaffeinated, but most refused saying there wasn’t any. Every day she stayed all day and evening and one day brought in some teabags so she could make more tea, the staff there refused to let her fill her flask on the grounds of health and safety. No hot water in the rooms! But they brought in tea and coffee? This was inconsistent. I hadn’t eaten much and was very hungry, and also breasg-feeding. The food was pretty bad, very processed and very little vegetable content. My husband bought me in some simple pasta and sauce in a tub and asked if he could heat it up for me and was told flatly no. Another nurse who overheard mentioned on aside that there was a public microwave downstairs he could use and bring it back up. Stupid rules or unhelpful staff? I don’t know.
On the second or third night Niah was admitted to NNU because of his jaundice so they could put him on the ‘sunbed’ for 24 hours. I have to mention that the NNU staff were some of the nicest people I have met, going way beyond the call of duty at all times. I was having to go down 2 floors (in a wheelchair) every 3 hours to feed him. On returning I was having to cup feed Arlo and then pump more milk for his next feed (Arlo was a poor feeder and had wrecked my nipples – feeding Niah was painful but doable). The midwife in charge told my mum to go chat with the night staff before she left and ask them to wake me when I needed to go down and organize a porter with wheelchair. She did this and was greeting with the reply “wake her? Doesn’t she have a mobile phone?” I did, I didn’t think I should use it. Most of the night staff were lovely – the one that said this was one of the two who ‘showered me’. Another member of staff at the desk said she would do it.
I was asked by the same midwife (a lovely lady who was also lactation expert) if I needed any help with the twins one morning. I said I would like someone to help me bathe them, maybe the next day. She said that was no problem. The next day I asked the midwife that came in and she looked shocked and said “Do you need someone to give you a demonstration?” I said no (I am a trained nursery nurse, teacher, and experienced care assistant) that I just needed help because there was two babies and I still couldn’t move much. She said “well we don’t usually do that I’ll see if anyone is free” No one ever came. My mom and dad came in later and they went and found the bathroom and bathed them for me. I really wanted to do this (with help) I wanted to be proud and show my parents “look what I’ve done for myself” I was in such a pathetic state. I remember the first morning I managed to dress them on my own, it took ages and I was in such pain but I was so pleased with myself.
The same lactation expert tried very hard to start me off on a feeding routine of 3 hours, but whenever she was out of sight these 2 other midwives would come in and start telling me to break the routine and feed the babies. No one asked me ever if I wanted to demand feed or not, and I was being given totally conflicting advice. I snapped by this point and told one of the midwives she was being irresponsible – I said if they had differing ideas on how my babies should be fed they needed to sort that out amongst themselves before talking to me. I was totally fed up by this time.
I eventually went home, but by this time I had seen 14 different doctors / consultants, and more midwives than I can remember. My own consultant didn’t turn up to see me until the night before I left, and only after the registrar had been called by my husband and we had made a complaint. I know full well that I had gained the reputation as a difficult patient by the time I left. I know there were people I had snapped at wrongly too. It all boils down to that first awful experience in the shower for me. There were many other less than great aspects to my treatment, but that dehumanized me. Less than human. That was how they treated me and how they made me feel. After that point I could not begin to recover my self respect until I was back home. Unfortunately the bad experience probably contributed greatly (so they say) to my PND which deprived me of the precious memories of the first 2 months of my babies lives. When I reported it the day before I left there were several issues of which the ward manager was ‘aware’ such as a very rude orderly which she described as ‘an ongoing issue’. There was more to come when I went home and found myself in the hands of the local midwives, and to be honest I was never going to be an easy patient now – I had lost all trust. I don’t know why it had to be this way. I know there were other people having problems on the ward too, I suppose my problems were magnified by me having twins and a C section. The last thing the registrar said to me was “I hope this hasn’t put you off having more children” and I answered honestly (I always do) “actually it has”. At my age I don’t intend to have more, but if I found myself pregnant I would do whatever I had to, to pay for private treatment next time.
I remember when I got home late at night lying on the bed just sobbing and sobbing and the words ‘less than human’ going round and round in my head. They let me out telling me that a midwife would be at my house in the morning to check the jaundice and if it was not improved they would resubmit me – I was terrified. The lactation expert said “go home and feed them LOTS and LOTS, the food will stop the jaundice. The next morning the midwife (and trainee?) turned up unannounced early in the morning – the boys were fine. I, however wasn’t, my bp was sky high and I was at risk of stroke apparently. They told me I had to go back – but I didn’t take the babies with me, I left them with my parents. I went to triage, took whatever medication they had to offer and refused flatly to ever spend another night in that place.
At the end of the day the NHS gave me my beautiful boys and for that I am eternally grateful, but I wish my first memories of bringing them into this world hadn’t been like this. The photo of them is just yesterday – their 3rd big boy bathtime and my parents house (we only have a shower).

…completed writing this on 13th August 2009, when the boys were almost 7 months.
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